tag:blogger.com,1999:blog-22258503.post114321956330968402..comments2017-11-30T05:53:42.255-06:00Comments on All about Baby Drew: Maybe, hopefully...Janahttp://www.blogger.com/profile/05392541119149178418noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-22258503.post-1144026848294426682006-04-02T20:14:00.000-05:002006-04-02T20:14:00.000-05:00I've been following all your updates, and have enj...I've been following all your updates, and have enjoyed looking at Elizabeth's pics as well - so cute about the Nemo shirts :o) I'm glad to hear baby Drew is doing better and that surgery is over. I will continue to pray for him and your family and keep reading the updates. Hang in there - sounds like you are all very strong and handling things well. Drew and Elizabeth are both beautiful. I can't wait to hear that you are all home and on the road to recovery one day soon.(((((((HUGS)))))).<BR/><BR/>Sincerely,<BR/><BR/>Jeanene<BR/>(Playhouse & Fantasy Island)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22258503.post-1143326034574997392006-03-25T16:33:00.000-06:002006-03-25T16:33:00.000-06:00Oh He is beautiful. I am so excited for you. Whe...Oh He is beautiful. I am so excited for you. When our son was on ECMO some of the biggest hurddles he faced were gettting the "volume" off. He was engorged and at one point was 17.9 lbs.<BR/><BR/>My Ethan was paralitically sedated and his eyes were quite literally swollen shut. I didn't see any movement from him for so long it was terrifying.<BR/><BR/>Drew looks fabulous. I think to err on the conservitive side is by far the best. Especially with ECMO.<BR/><BR/>I too, looked for the days when we could be out of the "ECMO" room. It's funny, because even now, they refer to it as the ECMO room, even when there isn't anyone on ECMO in it.<BR/><BR/>Does the hosptial you have, employee a family support cordinator? for the NICU? I found it was really benificial to me, to mingle with the other NICU parents over lunch once a week. It was so nice.<BR/><BR/>You know, I think you hit the nail on the head... When you said that this has become "everyday" life for you. <BR/><BR/>Looking back, I think those days were so mushed together, and it seemed like once you walked into the NICU all time stopped, and it was a different world. Shift changes, and nurse boards and words I had never heard before. But.. over time, I did find a comfort in my new world. I hope you can too.<BR/><BR/>THe continuous up and downs are really hard. <BR/><BR/>I really do hope the trial off goes well. I will keep your beautiful one in my prayers, and Mom and Dad too.<BR/><BR/>The pictures are just lovely.Lisa M.https://www.blogger.com/profile/01015215401481176075noreply@blogger.comtag:blogger.com,1999:blog-22258503.post-1143320479086442072006-03-25T15:01:00.000-06:002006-03-25T15:01:00.000-06:00Drew is just a doll, I am still praying for your f...Drew is just a doll, I am still praying for your family daily.<BR/><BR/>God Bless<BR/>CrystalAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-22258503.post-1143259534564949062006-03-24T22:05:00.000-06:002006-03-24T22:05:00.000-06:00That sounds like some better news and some definit...That sounds like some better news and some definite progress. He is soooooo cute, he really is. I am keeping him in my prayers. Hang in there! (((HUGS)))<BR/><BR/>Lisa, Zach and EmilyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-22258503.post-1143245513158004332006-03-24T18:11:00.000-06:002006-03-24T18:11:00.000-06:00Encouraging news today. Thanks so much for updati...Encouraging news today. Thanks so much for updating so often. I continue to pray for you. <BR/>(((((HUGS)))))<BR/>DebbieAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-22258503.post-1143238952059282402006-03-24T16:22:00.000-06:002006-03-24T16:22:00.000-06:00I will be praying for you. He is so beautiful.Chr...I will be praying for you. He is so beautiful.<BR/>Christina(tina103)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22258503.post-1143237085324888812006-03-24T15:51:00.000-06:002006-03-24T15:51:00.000-06:00This little guy will always be in my thoughts and ...This little guy will always be in my thoughts and prayers. He is just gorgious Jana!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22258503.post-1143227984567130152006-03-24T13:19:00.000-06:002006-03-24T13:19:00.000-06:00Oh Jana he is just beautiful!Oh Jana he is just beautiful!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22258503.post-1143224703717363692006-03-24T12:25:00.000-06:002006-03-24T12:25:00.000-06:00Encouraging news, we are praying for 'our Drew bab...Encouraging news, we are praying for 'our Drew baby' and will add the other little guy to the list. Our hearts are with you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22258503.post-1143220326487006862006-03-24T11:12:00.000-06:002006-03-24T11:12:00.000-06:00Sounds like good progress!! I'll be praying for y...Sounds like good progress!! I'll be praying for y'all!Anonymousnoreply@blogger.com